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“How can I do that?”

Everything shifted today. His PSA is rising slightly but significantly enough to warrant an added medication. The progression continues – what he calls “a ticking time bomb inside me with no way to get it out.” Denial of the inevitable breaks into consciousness and plummets me into a visceral depression of mind and body. How [...]

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Musings on Clincal Trials, Gender & Timing of Immunotherapy

Last week at an US Too New York meeting, Dr. Daniel Petrylak (Columbia University Medical Center) observed that many more women go into breast cancer clinical trials than men go into prostate cancer clinical trials.  Interesting.  And why? My guess is that 1.  Women are offered more clinical trials than men. 2.  Men may be [...]

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Kismet Always Wins

There are a few rare moments in life when the universe appears to step in and take control, leading us to unexpected paths of wonderment. One miraculous moment happened yesterday. Suzanne and I went to Memorial Sloan Kettering Cancer Center for my regular three month visit with my hematologist.  I was still somewhat shaken after [...]

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Life lived in three month increments

Richard’s cancer is undetectable for now. He’s responded very well to the hormone treatment but he is not cured — only “managed.” Our life is lived in three month increments until the next PSA test. We live each season at a time — perhaps like primitive peoples who honored the uniqueness of seasons passing. Each [...]

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My vision is that one day collective intelligence will cure my husband’s advanced Prostate Cancer

We all need visions (& wishes). Mine is that our global collective wisdom will save lives — literally. Pleased to report that I’ve recently co-authored a chapter in the soon to be published book, Social Knowledge: Using Social Media to Know What You Know (Editor: John Girard). I am particularly fascinated by how social media [...]

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